"Meaningful Engagement of the communities of people affected by TB in the development of national strategic plans on tuberculosis"

 In TB, the concept of meaningful involvement of the community started to emerge only with the establishment of the Global Fund to Fight AIDS, Tuberculosis and Malaria (GFATM) and the introduction of Country Coordinating Mechanisms (CCMs).

 

The concept of meaningful engagement of people affected by TB later evolved with the adoption of the Funding Model and introduction of the requirement to have country dialogue – a participatory process of development of country applications. Finally, in its Sustainability, Transition and Co-financing Policy, the GFATM speaks about an “inclusive multi-stakeholder process” of development of National Health and Disease-Specific Strategic Plans (NSPs). While CCM and country dialogue may serve as a good proxy for assessment of community engagement in national TB-related decision-making, it is more comprehensively and accurately reflected in the way they are engaged in the development of NSPs.

 

However, so far there have not been any systemic attempts to assess community engagement in this process. To address this gap, TBPEOPLE, the global network of people affected by TB, with financial support of the GFATM conducted a study on engagement of the communities of people affected by TB in the processes of NSP development as an indicator of broader community engagement in national decision- and policy-making processes.

The study revealed some of the challenges and barriers faced by community organizations, and came up with a set of recommendations, which are expected to help improve the situation with community engagement

Brochure "You and Tuberculosis"

The goal of the brochure "You and Tuberculosis" is to explain in an easy and digestable way what the TB diagnosis means and to debunk the many myths surrounding the disease. And the fact that the brochure was written by people who have already beaten TB, makes it particularly useful for those who just faced the diagnosis and needs both information and moral support.

The work on the brochure involved many people. The main authors were Paulina Siniatkina, Ksenia Shchenina and Maria Tselovatova. Besides, Paulina -- project author and TBpeople's Chief Artist -- made the brochure very lively with her illustrations. A number of TBpeople members contributed to the development of the brochure. Maria Krongauz, literary editor, made sure that both grammar and style of the text were impecable. And the myths section was dealt with by some of the world's leading experts from the United States, Russia, Ukraine and Moldova, which makes the brochure very scientifically sound. It is important to note that the brochure was approved by the Chief TB Specialist of the Russian Ministry of Health, Dr. Irina Vasilyeva.

And of course the brochure wouldn't be possible without the support of the Lilly MDR-TB Partnership, which provided funding for the development and printing of the brochure.